Senators draw attention to mysterious illness

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By Carol A. Clark

The Senate unanimously passed legislation introduced by Sen. Tom Udall, D-N.M., to take a first step toward boosting research and education efforts related to Cerebral Cavernous Malformation (CCM).

CCM is a relatively unknown illness more prevalent among New Mexico Hispanics than any other group.

“I have not personally heard of the disease,” said Nurse Manager Megan Pfeffer of the Los Alamos County Health Department. She checked her registry of reportable diseases during an interview Tuesday and said since CCM was not listed, she would have no way of knowing if anyone in Los Alamos has been diagnosed with the disease.

Pfeffer suggested contacting the University of New Mexico’s pediatric department.

Administrative Assistant Debbie Roybal from UNM’s pediatric neurology department said a few cases have been diagnosed in Santa Fe and Taos and perhaps as many as 100 in Bernalillo, but none in Los Alamos County.

Dr. Leslie Morrison, a pediatric neurologist and an assistant professor at the University of New Mexico Medical School, emphasized the steep human cost of the disease as part of Udall's news release.

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